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After lots of back and forth, I have finally decided to create a blog of Millie's story. When we first started on this adventure a few people told me to start one, but I couldn't bring myself to do it. I did however, take huge comfort in keeping a diary for our daughter, during her time on NICU. In my last diary entry to her I congratulated her on her discharge. Our little fighter had spent 12 days in intensive care, 50 days in high dependency and 18 days in special care - A total of 80 days in hospital. 

She was given 40 different drugs whilst on the unit, and was extremely close to not making it at all. Naively, we thought that was the end of our premature baby roller coaster. We soon found out, however, that even though you've made that last entry, closed the diary and finally left as a family of 3 through the NICU doors you tirelessly walked through every day - The roller coaster doesn't end there...

This is Millie's story



  • laurayoung1989


Seeing this little one starting to smile more and more every day, makes us realise how lucky we are. There was a time where we never thought we'd see her little smile - and its well been worth all the stress and worry to get to this point! I haven't written a post for a while, as I've been absolutely exhausted. Millie has had tons of hospital appointments / health visitors coming round recently - I am so glad I invested in a diary!!

We finally had some free time today, so went on a lovely family walk this morning and got talking to a couple while we were there. They came over to ask about Millie, as they saw her oxygen tank. When I explained Millie had been born premature at 28 weeks, they said their son had recently lost a baby boy at 24 weeks. He was a still born.. My heart really went out to them. I have absolutely no idea how any parent can go through this. They explained their daughter in law had been in bits, but they absolutely amazed me with their positivity. I could see that it was their help and support which would get their son and daughter in law through this terrible time, while making sure their baby boy was never forgotten (the most important thing to do, I think). I can't stress enough the importance of family during these difficult times. Our family have been absolutely amazing with Millie, and really rallied round to help us. There is absolutely no way we have got through this without them.

I have been getting a lot of messages from people within my social circle, about my blog posts. A lot of people have been through similar, or worse, experiences - and I had absolutely no idea. Parents are so resilient and amazingly strong, they really would do anything for their children. Although Millie is not a 'normal' child, she is absolutely incredible and could not be loved any more. We will always encourage Millie to do whatever she wants to do, and be what ever she wants to be. I am sure she wont let any of her disabilities hold her back, but we will always be there for her - Like the parents we spoke to earlier - to continue giving her positivity and strength for her whole life.